THE PRESENT CRISIS: LIFE DOWN TO ITS ESSENCE

Times Square, NYC. Flickr.

Who ever imagined that Times Square in the Big Apple would empty into a ghost town or the streets of Toronto would clear like smoke? Shuffling behind Asia, we’ve surrendered our Starbucks ritual, vacations, graduations, and worship gatherings. And in so doing, we’ve torn from the social fabric of our humanity: community. What has really upended our life in the West is the power of choice the pandemic has compelled us to forfeit. In our technological prowess and the comforts it’s secured for us, the loss reveals a people who are culturally not very good at suffering. >> Read more.

DH. The Banner magazine

Autistic Genius

Being alone was one of the bitterest disappointments of my young life. People made fun of my stilted manner, my pedantic speech, and my detachment from other people.

I walked through the scenes of my life like an outside observer, stepping carefully over the rubble and staying out of trouble. There was very little happiness in my world. Luckily, I had a natural gift for understanding machines and making things work. But people were a complete mystery to me.

– Switched On: A Memoir of Brain Change and Emotional Awakening

Smoking Guitar John E. Robison Designed for KISS. Pinterest.

You may have brought John Elder Robison into your home in the 70s if you watched TV or played with an electronic toy. His was the brilliant mind behind the guitars that breathed fire and launched rockets and drove the KISS fans wild from the stage. The sound equipment he built for Pink Floyd’s sound company played before millions across North America. But he left the world of rock and roll thinking himself a fraud and failure, unable to see his value in the social fabric because he couldn’t read social cues. John didn’t know he was successful because he didn’t feel successful. So he moved into the corporate world, engineering electronic toys and games for Milton Bradley until he climbed the ladder where at the peak he found himself managing engineers, and social skills became more important than technical expertise. Although he remained troubled by people’s response to the differences that were evident in him, John didn’t know he was autistic for 40 years until he picked up Asperger’s Syndrome by Tony Attwood. Nor does he consider himself a genius, but Malcolm Gladwell will disagree because by the time John was 20 years old, he had spent well over 10,000 hours studying music and taking apart electronics, beginning with repair and eventually creating circuits of his own design. John made full use of the laser focus and prodigious capacity for knowledge that was characteristic of Aspergians alongside his commitment to hard work to carve for himself a fulfilling life. His first book, New York Times bestseller Look Me in the Eye, opens the door into the mind of autistic children and those who seem disconnected from the world. I was deeply touched by the testimony that takes us past the struggles of the autistic to the hopes of connection and belonging that embody the human spirit. Our celebrated guest, who has appeared on the Today Show and given countless interviews and talks throughout the country, has graciously taken the time to share some of his discoveries and triumphs with us.

Can you take us through the various points of your journey where you successfully applied your gifts in the face of obstacles?

With a drunk, violent father and a mother who was often manic and sometimes out-and-out crazy, my home life was chaotic and unpleasant. Teachers sometimes saw flashes of exceptionality in me, but that was overshadowed by the many deficiencies kids and adults loved to point out. With no support at school, I dropped out at 15 by which point my parents were in states of collapse, both of them having been committed to the state hospital numerous times.

There were no disability supports for kids back then, at least ones like me. I still managed to have a lot of fun as an emergent adult, playing music, riding my motorcycle, and tinkering with cars and machines. Musicians and car enthusiasts welcomed me because I could do things they valued. Knowing my social limitations, I realized I would never be the guy on stage playing the guitar or the driver racing a rally car to victory. But I could be the guy behind the scenes with the technical skills to help make those things happen. I also became good at fixing cars and between those things, I made enough money to get my own apartment.

I am really lucky to have the ability to fix and create things that others value. Repairing a car or a broken electronic device is a skill that is useful everywhere. Creating stories also has universal value. At first, I wrote reports and proposals for clients. Then I wrote articles in car magazines. After learning about my autism, I decided to write a book and then wrote three more. Now I am back to writing car articles and stories on neurodiversity while running a business that restores, sells, and services high-end cars.

My parents had their share of problems, but despite alcoholism and mental illness they were both successful teachers. I think they would be proud to see that I’ve followed in their footsteps. I enjoy learning and sharing my ideas as the neurodiversity scholar at William and Mary and the neurodiversity advisor for Landmark College. I get to speak on autism and neurodiversity at other colleges every year. As my father did as a professor of philosophy, I grapple with difficult ethical issues in various settings like government autism committees.

Creating pictures, also something I enjoy, too has helped me find success. I earned the down payment on the garage complex of my car company from concert and carnival photo royalties. Today I am proud to see hundreds of musicians and circus performers using my images, which have been widely published, from the pages of the Wall Street Journal to billboards along the highway.

Patch.com

What compelled you to reach for success over against your difficult upbringing and social disability?

Looking back at what I’ve achieved, I guess one thing is how important it was to me that I produce good work. The absence of security in my childhood also gave me a very strong drive to make it. I made myself successful as I learned how to minimize my disabilities to the point of acceptability and how to build up my gifts and find people like those musicians who could appreciate what I could do and whose minds were flexible enough to excuse what I couldn’t do.

I believe knowledge of autism at an earlier age would have changed the course of my life. Without the understanding of what made me different, I grew up thinking I was a second-rate human being. Today, with a large number of extremely successful clients in the auto restoration field, I look at myself and them and see how much social disability had held me back. At the same time, I see how far logic, reasoning power, and technical skill have brought me. These things gave me a strong desire to prove I was good and drove me to my various accomplishments.

You’ve cited studies that measured the internal physiological response of autistic people in the face of emotional prompts like watching someone get poked or hurt. Turns out autistic people sustain a stronger response of empathy than nonautistic folks for longer, at that. Could you talk about autistic people’s capacity to love?

Autistic people have the same capacity for love or any other emotion as anyone else. We just don’t always show our emotions in the expected ways, or to the expected degrees. And our emotional responses may not be the same as those of a person who is not autistic for a given triggering event.

How did you manage discouragement?

I just kept working. I failed at things, lost jobs, made and lost friends, but through it all I just kept going because I had no other choice. The weight of that mantle of sadness was very heavy for a long, long time. It’s much less so today. I have always wrestled with anxiety and depression.

Who inspired you in your journey?

In whatever field I worked there were always older engineers and technicians who seemed to be better at everything I could do. They challenged me to improve my skills. Looking back, I am not so sure they could actually do everything better than me, but being older they certainly possessed more wisdom and experience, and many had families and lives outside work, which I hoped to have one day (and eventually did).

For the longest time I internalized my failure in school and saw myself as just a high school dropout, an uneducated failure. I wish I had models who succeeded outside the mainstream but self-educated people are rare today, although they were quite common before the rise of “big education” in the 20th century.

I may look and act pretty strange at times, but deep down I just want to be loved and understood for who and what I am. I want to be accepted as part of society, not an outcast or outsider. I don’t want to be a genius or a freak or something on display. I wish for empathy and compassion from those around me, and I appreciate sincerity, clarity, and logicality in other people.

– Look Me in the Eye

Ready for His New Wife and What Men Really Mean

Mrs: How did you get me to marry you again?
Mr: Deception.
Mrs: Ah

***

Mr: I’m getting a dog when Tennyson goes to college.
Mrs: NO. It’s me or the dog.
Mr: (No comment)

***

Took over 10 years, friends, but I finally did it. Decoded Malespeak:

You look pretty, honey. (I want to have sex with you.)
Mmm. You smell nice, honey. (I want to have sex with you.)
That’s a nice outfit, honey. (I want to have sex with you.)
What a great dish, honey. (I want to have sex with you.)

***

Mr: Here, let me take a picture of you.
Mrs: No. I’m chunk-a–munk.
Mr: Oh, no you’re not. I want a photo for when you die.
Mrs: ?????

***

Man’s own words

***

Mom: Remember it takes a year for the Earth to revolve around the Sun?
Boy: So that means the Earth’s revolved around it ten times since I was born?
Mom: Yes. As I have around you these ten years.

***

Mrs: It kills me that one day he will grow up and know heartache, that he’ll suffer at the hands of a girl. Pause. Women are powerful.
Mr: Yeah. It sucks. They take your HEART, they take your MONEY, your self-ESTEEM. They take EvErything.

***

[Speaking of postpartum depression]
Mrs: Actually, I haven’t been depressed since I met you. Pause. I’ve been pissed off like hell, but not depressed.
Mr: You’ve been too pissed to be depressed, ha ha ha.

***

On her last birthday:
*Taking wife’s hand, sentimental* Oh honey, when you were born, the angels…
the angels…laughed. Detour. They laughed…at me.

***

9 Years Old, bedtime:
Boy: Can you see me?
Mom: Yes.
Boy: Even in the dark?
Mom: Always. Even in the dark.

When Life Doesn’t Cooperate

JK,

I wish I had the words and muscle to help bear your load. You have borne your distresses with such amazing grace. Caring for the elderly becomes much like the labor over young children and you are pressed on all fronts with little margin to tend to your own needs.

Ariel Levy, staff writer at The New Yorker, recounts in her memoir her traumatic miscarriage out in Mongolia at five months. She speaks of grief, loss, growing up, thinking she had been getting somewhere with her career, love, playing house, motherhood, when it all came crashing on her head and she realized she’d just been driving around. She longs for her lost child in the crushed dream of motherhood, and confesses the fear of being without a companion. I thought of you but also of us all.

She quotes a famed writer, a woman in her ritzy apartment late in life who, when asked about her unfulfilled desire for children, answered simply that everybody cannot have everything. Ariel came to see – slowly – that we can have some things. I would add that every gift, every station in life, comes with a dark side we don’t think too much about in eyeing what we don’t have. This side of heaven, as you know, life is a burden, the burden of our humanity. T’s hobble from a judo injury has tapered to a limp. But I am reminded that we all limp. And joy can be found in all things.

Life here has been too full. I don’t have hands enough for all that needs doing, putting one fire out after another. Preoccupied as I had been with T, it took 36 hours for me to look down and understand that my thumb was (very) mad at me and was shouting up through my shoulder. I had forgotten the freak wrench off the joint after that first scream. In the resentment at being stretched like taffy, at being kept from the writing in life’s madness and the home school, it hit me last night that I have one shot at this. No matter how hard I try in the future, I will not be able to do this day over with T, resurrect his childhood and do motherhood more patiently and sweetly. I will not be able to care for him as I would want to. In a blink these years evaporated, leaving me with the freedom I gasp for some days and the house quiet. What lessons in character that he has learned from me (by watching) will he take into the world, into his own life and family? Faced, in the past, with the choice of alter egos for a life I could relive, I would’ve – so satisfied with my person – chosen my present self. Now, I would jump at the chance to be anyone else. Someone better at happiness, someone who knows worrying saves no one. In all that selflessness of yours, be selfish with the joy, JK. I don’t envy you your sorrows but no need to look this way through frosted windows.

Love always,
D.

Dear God, yes, I’ll take Combo #4. The family free of injuries (could we throw in my parents?), obedient child, antiaging powers, and that book deal we’ve talked about. But on the days that a smile is a workout, I’ll take it à la carte, the grace just to get through and to know You’ve got this.

War and Peace

I can barely open the door before it throws itself in my face, rattling against its frame. I rein in my voice like I’m working a pulley, and talk to the door.

“I said hurry and eat, brush, and go to bed. I’m leaving the house.” I can’t help flipping the pitch at the tail: “You happy?!” Sharon Olds can keep me company over fish tacos. I make a note to grab my beloved copy, as my head makes it into his room on the last try.

He releases his weight on the other side and flops on the bed. “You wanna leave? FINE!”

“I’ve done nothing wrong. I just pointed out that you need to be more responsible when I’m not here. You can’t not eat all evening and then stuff your head in the fridge just before bed. You don’t want indigestion again. But you need something to be able to sleep now.”

The words walk out of his mouth almost staccato, measured. The boy who still feeds and cuddles with his stuffed tiger cub suddenly sounds sixteen. “Mom, I didn’t have an appetite. I don’t need to eat now. It’s no big deal.”

“Do you know why I’m going?” The words are rocks, breaking apart. The tears burn. “I’m leaving because you hate me. I love you and you don’t want to be near me and I don’t want you to go to bed hungry.” Anger, love. They are one and the same passion. I storm down the stairs and he is above me, hands on the banister.

“I don’t hate you!” he yells.

“Of course you do. Your actions say you do. You said I make you sick.”

Somebody come collect the boy’s jaw off the floor. His brows furrow, furious with indignation. “I never said that!”

“Yes, you did. And you blame me for everything.” For the backpack that throws up its contents on the floor, for the headphones you can’t find. For being your mother. “I’m going,” I turn, desperate for tissue, and he calls out, “Wait…I have to give you something.” He disappears into his room and as I blow my nose in the kitchen, I feel something hard being closed into my free hand. A ruby out of his treasure box, plastic and pretty the way it gleams, his most prized keepsake. It looks like the rock candy I licked down to a mound at his age. Something to remember him by.

He thought I was leaving for the long haul.

He’s gone upstairs. And my stomach is arguing and turning. It won’t survive a wait for tacos, so I scout the fridge when I realize he’s back, pausing behind me a moment like a long comma. He drops a piece of paper to the floor and finally goes to bed.

My eyes are sore and tender as the tears swell. Isn’t this the home we seek of our journey? We roll the dice, kick it up on the boardwalk and go back three spaces – even go bankrupt. We hope we don’t perish in jail. We make our way along the edge of our wins and the losses, biding our autonomy. But at striving’s end, all we want is to lay it down, to say and hear I want you. I need you. Please stay.

Men and Women: Oh, the Flu

She gargles the fire in her throat (upstairs),
makes lunch (downstairs),
dusts (both floors),
washes the sheets (downstairs),
reviews geography with her son (upstairs),
heats the castor pack (downstairs)
hacks into the waste bin,
does her saline wash (upstairs),
empties the trash bin (downstairs),
gets her boy more blankets (upstairs),
checks the soup (downstairs),
does the dishes,
runs over to the library (outside),
makes bone broth (downstairs)

 

He….well, he…pulls down the covers and does the hard work
of opening his mouth for the nice hot water and pills.

 

Thirty Years Later

I don’t know why people seek out fortune tellers. Why would you want to know the heartaches that lie ahead, the assurance that life will take your spouse and body and dreams?

He will be with his family tonight, Doctor, when he goes home, the deathless man says. Why should I tell him that tomorrow he is going to die? So that, on his last night with his family, he will mourn himself?…Suddenness. His life, as he is living it – well, and with love, with friends – and then suddenness. Believe me, Doctor, if your life ends in suddenness you will be glad it did, and if it does not you will wish it had.

Not me, I say. I do not do things, as you say, suddenly. I prepare, I think, I explain.
~ The one quotable text from Obreht’s The Tiger’s Wife I can’t recommend

We hope, with foreknowledge, to hedge our bets, if only mentally. We like to imagine that we can avert, if not preempt, the undesirable – in the least, prepare ourselves and explain it. But the suffering is bad enough. Do we really need to expect it, too? And the glad blessings? Will their surety really help us live differently? Halfway up the California mountain thirty years later, I look down at the girl I left behind on the other side of the country. I wish I could promise her the thousand joys she dare not believe, the love in unexpected places, friends and a mess of food around her table. I wish I could teach her to nurture herself, admonish her from her follies. But far and past, she is out of my hands. And she is so frustratingly, so helplessly her. She won’t do it any other way.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Life hangs by a prayer but you take so much for granted in your unhappiness. You have community and, for all their sins, parents who cherish you.

Stupid girl. You don’t listen. You need to take better care of yourself. You eat too much ice cream. You can fool others and even yourself, but not your body. One day you will have to learn to eat, sleep, live all over again. These brick apartments suffocate you but one day you’ll mark your own path. You always do. You will drive through a painting of Montana mountain and sky, and survey the gleaming Pacific. There are many, many good people ready at the crossroads of your life to look out for you. I am sorry that life will become so unyielding you will stop singing for 10 years.

There’s a man waiting to find you. He wants to build you a new life and provide all you need. You don’t know the cost and gift of marriage. The walk down the aisle is just expensive trimming. Though he’ll disappoint you many times over, it’s that he chooses you everyday. You will squeeze and crush the heart he left in your hand. And in his eyes you will still be enough.

You will experience the power and genius of God. Feel fingers and toes in your womb, touching you from the inside. Those hands and feet will one day refresh your grave, mark the place of your memory. She was here. You will put your baby to your breast in the rocking chair, seat of the highest office in the world. You will sing again. Sacrifice is a privilege, because it means a purpose greater than yourself. But you will embitter your child too, as your parents did you. The love of parents, our broken inheritance.

One day the lights will go out in your home and you will read to your men by candlelight. They will love the inflections of your voice.

I didn’t think people could change but you are proof. I’m proud of you! You will grow less rigid, softer with others, having learned how foolish you can be. Wisdom works backward. Your life will be a desert’s bloom, well tolerant of drought. And before the sun has set on your dreams, right here on the edge of this switchback, you will learn it is safe to stop hurting. Learn that you are more than your fears, more than your boy, more than your most unworthy moments, more than your achievements.

The loyalty of friends, the forgiveness of family, You will be wanted and needed – your gifts of grace. And the words. You will claim your place in a virtual world, a very real world, and somehow in all your struggles and humanness, make many people laugh and think. You will matter. Will it take 30 years for you to know it is All Right to breathe, to smile, to trust that life is worth it?

You’ve done well, my dear. Closing the wrong doors to love, choosing the right one. You will bring a beautiful, thoughtful boy into this world. And though life has knocked you flat beyond counting, you keep climbing. We will look each other in the eyes and I will tell you everything when you reach me.

 

PMS: Premeditated Murder Syndrome

Stand back or I’ll shoot. Unless you’ve brought chocolate. No, not that kind. *Godiva takes bullet, falls from blogger’s hand* Lily’s With Stevia. Extra Dark. Or anything fried, like yesterday’s KFC. Can you believe that? No one, nothing made me do it but the insufferable hormones. And why does the world have to choose this week, of all the ones in the month, to be uncooperative? The burrito that took as long as the Second Coming, homeschool boys, my own body withholding sleep. Husband, KEEP AWAY! For the sake of our marriage and grandchildren, your very breath, stay in the master and I will stay out. Some things are just not worth attempting under constraining circumstances. Conversation. Eye contact. Love. Why is the sun so bright, the cherry blossoms so pretty? Why are you all here?? There you go. *Toss* All I have are three bullet-proof vests for the first commenters. The rest were warned. Men are targets because they are men, women for being women. The others because they’re pets sleeping at the feet of computers. I’m going to have a word with you someday, Eve. I bet you didn’t bleed in Eden. That’s why Adam loved you, because he was unfamiliar with PMS. And you thought it was unconditional. Bloody sacrifices came after the Fall so there was no blood in the Garden. Paradise included smooth hormones and you had to have more, sweet-talked your man into taking the apple. You wretched woman, bringing this curse down on us. I’ll show you curs — !@#%^&!^!!!