Cancer, COVID-19, Game On

The Surprise

I woke up with a big lump in my neck the Wednesday before Easter in 2018. My wife was on her way back from a business trip. That night I went to the hospital because it was getting worse. She met me at the hospital, I had emergency surgery that Friday because they didn’t know what it was. I got the call from the doctor that Tuesday. He wanted me to come in, I asked him for the news over the phone. Stage Two Hodgkins Lymphoma. It was in my neck and a node behind my heart. Close friends came over that night. I wanted a second opinion for the course of treatment, and my father who’s worked in the health care industry many years got me an appointment at City of Hope for a week later. They confirmed the diagnosis. We didn’t cancel the trip we had planned to DC. The doctor said we could take it. We went on the trip with the boys, thinking it might be our last vacation. We had a great time but my wife got upset with me when I kept stepping away from the family at times. She wanted me to be more present, didn’t know I was having my moments, passing by these monuments, looking at the three of them, feeling like a ghost.

The Journey

August 2018: With Family During Chemotherapy

We came home, I started treatment end of April, which went through Sept 2018. I started eight rounds of chemo. My wife wondered how I was going to handle it ‘cuz I hate needles. Thirty-seven pokes. I documented my journey on Facebook, calling the day we got the diagnosis Day Zero. Highs and lows. I wanted to show people that God had this under control. We were not going to be fearful. We were going to be fearless. I didn’t paint a pretty picture but a realistic one. I told people the days I felt like absolute junk. I wanted my boys, who were nine and seven at the time, to know that whatever happened to me, God had a plan and it really made an impact, I think. Their class, their school, their teachers, our Little League, my CrossFit gym, our church, my dad’s church, the whole community was behind me.

Fear

When you get cancer, it’s what everybody feels right now with COVID-19. Keep social distance. What everybody is concerned with right now is what a cancer patient deals with on a daily basis while they’re going through treatment. We’re told that if we have a common cold, a fever of 99+, we gotta go to the hospital. So I’ve lived this. My family has lived this. So what people are concerned about – welcome to the cancer world. At the same time, everybody’s cancer journey is personal. And you can’t tell a cancer patient how to act and react. But I chose to be proactive, use common sense. I never stopped working and working out. I stopped traveling because I didn’t want to get on a plane. But I still met with customers. I practiced good hygiene, washing my hands. I would still shake people’s hands when I was sick, though I would do a lot more fist-bumping. because I had a great God. I was not going to let the cancer dictate my situation. Was I scared? Yeah, but as a believer in Jesus how can I be so scared that I was gonna stay tucked away in my house? No matter what happened, God had it under control. I used the strength of the community to give me that guide. Text messaging, phone calls, video calls, what people are doing right now I did a lot. But I’d still go out in public, I’d still go to gyms and still work out, but I’d use common sense and listen to my body. I exercised, ate the right foods.

Making a Difference

We started a company called Move through Motivation with the people that actually came to my house the night I found out I had cancer. I’ve known these people for 15 years. We have a Youtube channel, a podcast about my mission and the story behind the story. The podcast shares people who’re going through struggles and what their life is looking like right now. Feel free to go on. I wanted to start a company that got people even just walking, exercising in an encouraging environment to show them how that would keep them healthy. And so Pray and Move is a small group we started in 2017 with some guys from our baseball group and friends from church, and we meet every Sunday morning at 5:15. We’re still meeting every Sunday. Because the parks are closed, we’re practicing safe social distance running on the streets in our neighborhood. This past week there were six people that came. I’m a military man, served in the US army, I deployed in 2003, was in a severe accident, landed in the hospital. I’ve been through many tragic experiences that have set me up for this and to encourage people in this current situation. But further than what’s going on with COVID-19, my goal is to help people with health. So if you’re sitting on your couch all day, I want to be the encouraging voice that says let’s get up and go for a twenty-minute walk. If you need an encouraging group, I can find people you can be accountable to and I will be that motivation, although I can’t be the driver. The drive has to come from you day in, day out. I want my company to inspire people. Before COVID-19 hit, we were about to start a Just Move campaign with our two neighboring cities to help families come out and move, provide fun activities. If I can change the mind of just one person to walk just twenty minutes everyday, to do something more than what they were doing months ago and start them on a track to health and wellness, normal and healthy people will be able to fight a pandemic like this. The cancer didn’t define me. It just motivated me to help others any way I can, whether they’re going through cancer or just struggling to move more.

What happened at the end of your treatment?

The chemo killed the cancer cells. I’m in remission. We get a five-year window. So far after a year and five months, I’m clear. I scan every six months.

What was the greatest lesson you learned?

Spread love and positivity in dark times. When you go through something trying, you have a different perspective on what life’s really about. Spread love.

 

A big thanks to Matt for this conversation, his strength, love, and service. He roves the church (when we gather) looking for ways to lighten the load for everyone. Be sure to catch the awesome Youtube he filmed the day he got his diagnosis, and plug into his podcast and adaptable daily regimens on his Facebook page.

Please address comments to the blog host.

 

Hit by a Train

I was crossing a rough set of tracks in a 28-wheel diesel truck in October of 2013 when to my astonishment and fear, the crossing gates suddenly dropped, the reds lights began flashing, and the warning bells rang. With not even time to think, all I could do was tighten my grip on the steering wheel. I watched the train come at me before I heard the metal on metal and felt the impact. Everything slowed to a deafening silence and darkness.

When I came to, blood was running down my face. It was over half an hour before someone showed up to help me out of my twisted cab. It took that long before the 107-car freight train could stop after pushing my trailer down the tracks more than a mile and a half and the engineer could reach me on foot. I fell limp into his arms. After a grueling ambulance ride to a clinic, I was emergency-evacuated by helicopter to a medical facility an hour away. A priest there told me it was a miracle I was alive.

I suffered a major concussion with loss of consciousness, contusions on my chest and lungs, and open lacerations on my face. Thankfully I had not damaged any organs. A nurse said God was not finished with me yet. After three days of stitches and morphine, I was discharged into the care of my wife who flew to North Dakota from our home in California.

We discovered weeks later that my jaw had broken and my wrists fractured. The right one got a cast and the left was left to heal on its own. Nine weeks after the accident, my jaw had to be rebroken, realigned, and held together with a titanium plate. I drank Christmas and New Year’s dinners through a straw. Even long after the surgery, it hurt too much to chew, and I remained weak, constantly dropping things. I had never known pain like what I had in my neck and back.

Making my way through 24 specialists, I was diagnosed with anxiety, depression, PTSD, nerve damage, and chronic back and neck pain. I went from being healthy and active to depending on a cocktail of sixteen drugs: pain meds, psychiatric meds, muscle relaxers, sleep meds.

The valley of the shadow of death was no metaphor for me. And told by my doctors that the pain and terrors would be forever, I set up camp in that valley. For several years, I could not drive from the trauma and hardly left my room. Most days I hid beneath the covers, hanging thick blankets over the windows because the dark felt safe, although it didn’t relieve the pain as I imagined it did. The nights were the worst with the horrible nightmares. And startled, I bolted up in bed anytime I heard the train pass.

Was this how the rest of my life was going to play out? The anxiety took a serious toll on my family. My uncontrollable bursts of anger was growing too much for my wife and damaging my relationships with my daughters. I was not the husband or the father my family knew.

Something had to change. I needed to change. I had cried out to God for help and heard that whisper, “Are you ready?” in answer. But no, I wasn’t. I had settled for what my life had become instead of fighting the good fight for His best for me. Seeing me in excruciating pain three months ago, my wife prayed, “Lord, I’m not even asking for healing at this point, just mercy and grace,” She heard back, “I have already healed him. The rest is up to him.” She did not know about the book by John Sarno that our blog hostess HW had encouraged me to read. But I was tired of hurting my family, tired of being estranged from caring friends, tired of all the medications, tired of the suffering, tired of living. I told God I was ready and picked up the book.

In Healing Back Pain, Dr. Sarno, who had freed thousands of people crippled from pain, explained the mind-body connection and how emotional pain seizes the opportunity of a physical injury to make its home there. Though he made no spiritual references, I was brought back to Biblical truths I used to teach on the importance of our thought life. I realized I had to see myself healed before I could embrace my healing. I changed my self-talk and stopped coddling myself. I slowly but purposefully started exercising and through very difficult withdrawal symptoms, weaned myself off the meds. I am down from 16 to 2, and am reminded that I need to hold that picture of myself drug-free.

Six years, four months and counting, I am free. No more bone pain throughout my body. No more anxiety and depression. No more PTSD. No more pain killers. I grab a gallon of milk with no thought. I recently drove over six hours from Los Angeles to Las Vegas and back home, my back just fine. I work out regularly and the other week went skydiving for my 60th birthday. Eager to get back to the working life, I am at a new job and excited for what the year holds for me.

God sure isn’t finished with me. I am just beginning.

Dino Fulton

Men and Women: Oh, the Flu

She gargles the fire in her throat (upstairs),
makes lunch (downstairs),
dusts (both floors),
washes the sheets (downstairs),
reviews geography with her son (upstairs),
heats the castor pack (downstairs)
hacks into the waste bin,
does her saline wash (upstairs),
empties the trash bin (downstairs),
gets her boy more blankets (upstairs),
checks the soup (downstairs),
does the dishes,
runs over to the library (outside),
makes bone broth (downstairs)

 

He….well, he…pulls down the covers and does the hard work
of opening his mouth for the nice hot water and pills.

 

PMS: Premeditated Murder Syndrome

Stand back or I’ll shoot. Unless you’ve brought chocolate. No, not that kind. *Godiva takes bullet, falls from blogger’s hand* Lily’s With Stevia. Extra Dark. Or anything fried, like yesterday’s KFC. Can you believe that? No one, nothing made me do it but the insufferable hormones. And why does the world have to choose this week, of all the ones in the month, to be uncooperative? The burrito that took as long as the Second Coming, homeschool boys, my own body withholding sleep. Husband, KEEP AWAY! For the sake of our marriage and grandchildren, your very breath, stay in the master and I will stay out. Some things are just not worth attempting under constraining circumstances. Conversation. Eye contact. Love. Why is the sun so bright, the cherry blossoms so pretty? Why are you all here?? There you go. *Toss* All I have are three bullet-proof vests for the first commenters. The rest were warned. Men are targets because they are men, women for being women. The others because they’re pets sleeping at the feet of computers. I’m going to have a word with you someday, Eve. I bet you didn’t bleed in Eden. That’s why Adam loved you, because he was unfamiliar with PMS. And you thought it was unconditional. Bloody sacrifices came after the Fall so there was no blood in the Garden. Paradise included smooth hormones and you had to have more, sweet-talked your man into taking the apple. You wretched woman, bringing this curse down on us. I’ll show you curs — !@#%^&!^!!!

 

The Tyranny of Feelings

As passionate as I can be about things, I’ve only just begun to connect with the spectrum of emotions I had buried all my life under the stoicism.

When you reflect on your day as you turn out the lights, you are in fact revisiting how you felt about it, not what you thought about it. I’m seeing that feelings can be so prevailing they can redefine reality. You got word of a promotion – objectively, great news. But if it fills you with anxiety, that will translate a different news like maybe you’re really not competent enough. What if your spouse has little regard for you? His contempt will redefine what is true within the world you share. The final arbiter of our perception is emotion, not cognition.

Chief Justice Sonia Sotomayor in her early days as District Attorney couldn’t figure out where she’d gone wrong in one case. She replayed her presentation for a mentor who “identified the problem instantly: I was appealing to logic, not morality…since it is painful to most jurors to vote ‘guilty’ and send a human being to jail, you couldn’t simply reason with them to do it; you had to make them feel the necessity…put them in the shoes of the accused or the victim: make them feel the cold blade held against their necks, or the pang of unappreciated devotion that might drive someone to steal from a former employer…It was in effect to see that mastery of the law’s cold abstractions was actually incomplete without an understanding of how they affected individual lives.” My Beloved World

In the case of jurors, it is emotion that forges belief which determines conviction and behavior. Because when Sotomayor was arguing her case, she wasn’t feeding algorithms of reason into a machine for a logical verdict. She was appealing to people, people who were filtering the story through their own past, hopes, and fears as surely as they were supposed to aim for impartiality.

Yeonmi Park, who managed a harrowing escape out of North Korea, knows all about the power of feelings:

“In school, we sang a song about Kim Jong Il and how he worked so hard to give our laborers on-the-spot instruction as he traveled around the country, sleeping in his car and eating only small meals of rice balls [a lie]. “Please, please, Dear Leader, take good rest for us!” we sang through our tears. “We are all crying for you.” This worship of the Kims was reinforced in documentaries, movies, and shows broadcast by the single, state-run television station. Whenever the Leaders’ smiling pictures appeared on the screen, stirring sentimental music would build in the background. It made me so emotional every time.

Jang Jin Sung, a famous North Korea defector and former poet laureate who worked in North Korea’s propaganda bureau, calls this phenomenon ’emotional dictatorship’. In North Korea, it’s not enough for the government to control where you go, what you learn, where you work, and what you say. They need to control you through your emotions, making you a slave to the state by destroying your individuality, and your ability to react to situations based on your own experience of the world.” In Order to Live

The government wasn’t satisfied with subjugation of the mind. It wanted the heart because then the leaders had the whole person. And notice that you can create emotion – for someone you haven’t even met and for what is not real. This gives me hope that we can also deconstruct it, not remain enslaved to it.

I’ve always held to an Absolute Truth, ground harder than the sand mound of feelings, that can save us from ourselves. But I am seeing that where I’ve lived is really in the place of emotion, not of beliefs or facts. I have found anger much easier to access than sorrow. Anger allows me to borrow strength from the sheer force of it, as delusional as the sense of power may be, but what do you do with the sadness of inflicted pain except suffer its vulnerability and helplessness? It just hurts too much. Fear is another big one, and has accounted for a lot of my actions over the years. (I’m such a mess. Why in the world are you following?? Stay with me at your own peril.) Now naming is one thing, freeing oneself of it another. And so to face these darker sides of my psyche, I’ve had to enter their deeper waters. Following memory as far back as it would take me, I’ve relived the traumas of childhood that gave way to resentment and fear. But for the first time, I was led to think about my mother, how indignant, fearful, and powerless she must have felt in the face of her husband’s offenses while she was pregnant with me – all that despair I felt in the womb, the energy that pieced me together. I don’t like victim talk, but making sense of my context and beginnings has given me greater compassion for myself. I’ve also known that we hold grief and anxiety in our lungs and while I’ve made the connection easily in others, did not see until recently the chronic bronchitis I had as a child in this startling light.

When I was a kid, I didn’t salt my food. I felt guilty for the flavor, and so denied myself the pleasure. That went for the lettuce as well. No dressing. I took the asceticism to a whole other level in my adult years and only the other day recognized that I had actually invited much of the insane suffering in my life. I had to keep suffering because that is what Korean women do. It is how we show love, it is our lot. And our lot is where we are safe. It is all I saw of my mother, that for me to do and be otherwise would be not only criminal (how dare I enjoy my life?), but something alien and therefore…scary. Oh, how I LOVED my Bible passages on perseverance in affliction, on the cross I was to carry! Some years ago, I took a few lessons in the Alexander Technique, a mindful movement therapy. The instructor taught me how to lie down, really lie down. At one point I couldn’t help laughing out loud on the table. The deep, simple rest felt so good. At 30, I didn’t know I could rest like that, had been holding myself up in bed all those years. I now stand on unchartered terrain, a long but sure road where I am giving myself permission to stop hurting and to take my power back. I have died a hundred deaths. Surely that means a resurrection. Pleasure, comfort, (gasp) joy are within sight. At least I enjoy them every time here with you.

I had learned in my own depression how big an emotion can be, how it can be more real than facts. And I have found that that experience has allowed me to experience positive emotion in a more intense and more focused way. The opposite of depression is not happiness but vitality. I think that while I hated being depressed and would hate to be depressed again, I found a way to love my depression. I love it because it has forced me to find and cling to joy. I love it because each day I decide, sometimes gamely and sometimes against the moment’s reason, to cleave to the reasons for living. And that, I think, is a highly privileged rapture. Psychologist Andrew Solomon, PhD.

Where Beauty Dare Thrive

His scream punched through the room where I was hiding for my life and sucked me cold out of sleep. It had just turned midnight Saturday and as the dream evaporated, I did not know I would rest again only after dawn. My son had woken – for the umpteenth time – in pain and spit his thick, cloudy cough into the waiting mountain of Kleenex. Tennyson cried, holding the ice pack down on his head, wiping at watery eyes. How much can a kid take? How much could I? Unrelenting 16-hour-shifts nursing him hand and foot and chasing down every possible remedy, days of aborted sleep. I was now battling the flu.

The Money Tree uk.pinterest.com

This thing that’s mowed him down unflinching in the face of the best practitioners and products turned out to be a seasonal pollen allergy. Which is why it stealthily flared all last month as the pollen count here rose, and let up the two days it fell. Spring comes early in Southern California. On the way home with the diagnosis the other day, I decided to grab some plants to filter the air in Tennyson’s room. We picked out a big, tall palm and a cute little guy who made us smile, a Money Tree. Ten minutes later on our driveway, Tennyson was clutching his throat, hands wet with desperate tears. His throat tightened and hurt. I was afraid he would stop breathing. OTC antihistamines didn’t work. Eucalyptus and peppermint oils opened up the passages. As it happens, he was allergic to the plants. How sad is that, being allergic to the Money Tree! And a virus came along to kick him while he was down, sending him flying off a cliff, making sure not to neglect his parents. I didn’t remember my boy being so sick. But reserves are not bottomless. It’s incredible what life asks of us sometimes.

Where’ve I been? I’ve been stressed, if that isn’t obvious. We’re behind in school. Testing for Memory Master lies around the corner. The TV network PBS is also doing a feature on our music school and Tennyson was to be at the drums filming next week. The best laid plans of mice and moms, see them wheel away like chaff in the wind. It will be hard to swallow those events passing us by. The little mister has missed every baseball practice and Saturday’s opening game. We’ve been so disappointed, but the email from the coach touched me deeply.

Hi Diana,
No worries. I hope he is feeling better. His health comes before baseball. We are praying for him.

I wish this man knew the gift he was giving me. I’m sure he inspires kids to love baseball and teamwork, but his humanity and ministry to me meant everything. He’s played professionally, but didn’t forget it was about people, not the game. It takes so little to help someone up. You persevere in hope but how long? And how, in the teeth of it going from bad to worse? Answers can come from the most unexpected places. Some background on this one.

Flowers don’t like me. I can’t seem to coax them to life. I’m sure they sense the Tiger Mom presence, accordingly suffer performance anxiety. Or maybe they become passive aggressive and decide to just wilt. It also doesn’t help that I forget to care for them. And so looking up from the dishes, I was stunned at the sight of the bold blossom on my windowsill. I had given up on the orchid that dropped all its petals some six months ago even though it was said to be only going dormant. How foregone it’d looked, stripped of promise. But here was a triumphant awakening, the white silk so fragile, so strong. My eyes smarted. How…under my watch? In the midst of this despair? The tenacity not only of life, but of beauty. The insistence of hope.

***************

Goodness, is it only March? I can do this. Nine more months and I get to reset and wish myself another happy, hard year.

Comments closed.
holisticwayfarer@gmail.com

WANTED: Male Doctor With Vagina

Dr. Y:

I was told your peers on the medical review board will see this letter. The day you squeeze out a human being from between your legs is the day you will have earned your license as a doctor thanks to your closed-minded, dismissive attitude toward women. I couldn’t believe I had to appeal and work so hard for a simple test that would shed light on my troubles. I did not realize you were an arbiter of the services within my rightful reach. You were supposed to be my advocate. Little did I know I would have to prove to you my credibility as a patient. The testimony of my experiences and attendant symptoms was not significant enough. Since when is patient history insufficient? You “did not find it medically necessary” to learn what I could rule out to care for myself appropriately. You “did not need to know” right now? Who said my welfare is about you?

DrPhotoDo doctors really have to make us feel so stupid? Don’t dismiss women’s pains and symptoms if you don’t have a vagina that does different things throughout the month, and I won’t laugh when you hit andropause. But since you shouldn’t apologize for having been born the gender you take obvious chauvinistic pride in, you might see a female urologist next time. She should understand you as well as you can handle my concerns, yes? Acknowledge the limitations of experience and understanding your gender brings to your occupation and listen to your female patients. Rather than see us as people, you sit there matching symptoms against your sacrosanct checklist and call it science. It’s glorified plumbing. You seemed to think your job was to plug my case into your textbook paradigms and criteria of legitimacy. Doctor – while you don’t consider compassion, support, partnership medically necessary – your task, in the least, is to investigate problems on our behalf. Show respect for women who are obviously in tune with their bodies, not to mention educated. Most of us are not airheads or liars. If we tell you we feel terrible, believe us. Last I checked, this was America and my PhD in embryo development and childbirth that trumps your book knowledge entitles me to feel seen and respected as a human being when I walk into a doctor’s office with female concerns. You can’t begin to call yourself a physician until you remember that.

Diana Ha

*Don’t ever let any practitioner or medical staff member make you feel small. If there is no site supervisor, pursue it with the licensing board or state medical society. Doctors with the God Complex ruin it for the dedicated professionals who make every difference.